Jo’s story: “Pilgrims carers delivered first-class service”
Each year, Pilgrims Hospices support thousands of people across east Kent who are living with life-limiting conditions.
Although hospice care is often associated with beds on in-patient wards, much of Pilgrims’ care takes place in the community – in people’s own homes, and in care homes.
Thanks to skilled, compassionate and dedicated community teams, Pilgrims is able to bring hospice care directly to patients who wish to remain at home, or in familiar surroundings, rather than be on a ward. This includes Hospice at Home, a team of Healthcare Assistants (HCAs) who attend to patients who are at the very end of their life and/or who have suddenly, rapidly deteriorated.
Jo Cottam, a retired NHS Senior Manager turned holiday let owner from Tenterden, experienced Pilgrims’ community care after her mum, Patricia Edwards, was diagnosed with vascular dementia. She shares how Pilgrims supported her mum and their family at the end of Patricia’s life.
Jo shares her story:
“In 2019, my mother was diagnosed with vascular dementia. She lived in a charming cottage on our property, spending her days with us in the main house and returning to her cottage at night.
In early July 2025, Mum’s health took a concerning turn. She stopped eating for about a week, drank less than we hoped, and lost her mobility, making walking (especially navigating steps between our house and her cottage) extremely difficult and distressing for her. My husband, Simon, and her carer, Steve, provided essential support, but we grew increasingly worried.
We decided to keep Mum in her cottage full-time, as moving her was too challenging. This meant constant supervision, as she couldn’t be left alone. Encouraging her to take fluids was a slow, painstaking process of syringing small amounts into her mouth. On 10 July, we called our GP, who visited promptly. He prescribed antibiotics for a possible UTI, end-of-life medications, and arranged a referral to Pilgrims’ Hospice at Home team.
After a three-day course of antibiotics, Mum began to improve, slowly resuming eating and drinking.
Soon after, I received a call offering additional care support, which we desperately needed. Mum required physical assistance to move between her bed and sofa, constant prompting to eat and drink, and round-the-clock supervision.
Unfortunately, the caller later informed us that no additional care could be arranged immediately, though an equipment assessment was scheduled for the next day.
To our surprise and relief, that evening, two wonderful Hospice at Home carers, Jo and Sandra, arrived and said they would visit Mum twice daily. I was initially apprehensive, as Mum was used to familiar faces, but Jo and Sandra’s warmth and gentle introductions put her at ease. Mum smiled and co-operated fully, a testament to their kind and professional approach.
Over the next few weeks, every pair of hospice carers who visited showed the same compassion, treating Mum with dignity and respect.
They also supported our family, offering practical advice and emotional reassurance in overwhelming moments.
As a former Senior NHS Manager with over 25 years of experience, and with my husband, a retired Consultant Anaesthetist, we both recognise exceptional care when we see it. The hospice carers delivered first-class service.
We were astonished to learn they travelled significant distances to reach us in Tenterden, covering a vast geographical area. The team, led by the remarkable Mandy Hilden, exemplified dedication. Mandy’s hands-on leadership was inspiring – she never asked her team to do anything she wouldn’t do herself.
The carers went above and beyond, ensuring Mum was clean, dressed in her preferred clothes, and had her hair washed and styled. They made her laugh and calmed her anxieties, especially when she became distressed during repositioning, gently reassuring her even when she grabbed them in fear.
The rapport we built with the hospice carers in such a short time was extraordinary.
On 24 July 2025, Caitlin, a Palliative Specialist Care Nurse from Pilgrims, visited to assess Mum for potential future hospice care. Caitlin’s professional yet friendly demeanour brought smiles to Mum’s face. She patiently explained everything and answered our questions thoroughly. At the time, Caitlin was optimistic about Mum’s condition, believing hospice care wouldn’t be needed soon.
Tragically, on 29 July 2025, Mum passed away suddenly and peacefully at home, with us by her side, holding her hand. Caitlin, upon hearing the news, called to offer her condolences and support. Her kindness, taking the time to listen and guide me toward the hospice’s counselling services, meant the world during such a shocking and painful moment.
Pilgrims is an exceptional organisation, dedicated to supporting individuals with terminal illnesses, offering compassionate care in both community settings and specialised units. They prioritise the needs and dignity of each person, ensuring the highest quality of care during their final days.
Additionally, Pilgrims provides a nurturing environment for families, fostering support and understanding throughout the process.
The hospice team’s communication, care, and support for both Mum and our family were exceptional. We are immensely grateful for this vital service, which relies so heavily on charitable donations. Their compassion and professionalism made an unbearable time more bearable, and we cannot thank them enough.”
