Pilgrims end of life care guides
Pilgrims Hospices expert team of doctors, nurses and therapists have developed a range of guides to support GPs and other Healthcare Professionals who are caring for a patient with pallative needs or who is at end of life.
• Symptom Control Guidelines
A Pilgrims Hospices guide for GPs and Healthcare Professionals to support pain management and symptom control in palliative and end of life patients.
• Syringe Driver Guide
Guidance from Pilgrims Hospices on the use of Syringe Drivers for patients receiving palliative or end of life care.
• Advanced Decisions to Refuse Treatment - a Guide
The Mental Capacity Act (2005) made rules which must be followed when making advance decisions to refuse treatment. This booklet gives you guidance on how to support your patient and their family to make an advance decision within those rules.
Forms for patients referred to Pilgrims
These forms are for use by GPs and Healthcare Professionals who are making, or have made, a referral to Pilgrims Hospices services for a patient who is receiving palliative or end of life care.
• My advance decision to refuse treatment
This document allows a patient referred to Pilgrims Hospices to work with their GP or Healthcare Professional to specify in advance which treatments they do not want in future.
• My advance directive to refuse CPR
This document allows a patient referred to Pilgrims Hospices to work with their GP or Healthcare Professional to specify their personal choice in advance that they do not wish to receive CPR.
• My Advance Care Plan
This document allows a patient referred to Pilgrims Hospices to make people aware of their wishes through Advance Care Planning. This booklet includes a simple explanation about advance care planning and the different options. The booklet is a patient held record, and should be shared with all health professionals caring for that person.
• Dying Matters
A national coalition of 30,000 members, which aims to change public knowledge, attitudes and behaviours towards dying, death and bereavement.
• NHS End of Life Care website
Includes guidance for people approaching the end of their life. Some parts may be useful for people caring for someone who is dying, or people who want to plan in advance for their end of life care.
• British Lung Foundation
Support for people affected by lung disease.
• Palliative Care Guidelines
Regional palliative care guidance and opioid dose convertor developed by UK Cancer networks.
• E-learning for healthcare
End of Life Care for All (e-ELCA) is an e-learning project, commissioned by the Department of Health and delivered by e-Learning for Healthcare (e-LfH) in partnership with the Association for Palliative Medicine of Great Britain and Ireland to support the implementation of the Department of Health’s national End of Life Care Strategy (July 2008).
• National Cancer Action Team
Connected online booking system offers an advanced clinical communications skills course relevant to all senior health and social care professionals.
• Palliative drugs.com
Useful information on palliative care drugs.
• Primary Care Respiratory Society
An independent charity for primary care health professionals interested in respiratory medicine.
• British Lung Foundation
One person in five in the UK is affected by lung disease. Millions more are at risk. This charity is here for every one of them, leading the fight against lung disease.
• Carer support
Carers Support provides free, confidential and impartial information and support to carers in West Sussex and has a very informative website.