Pilgrims Hospices leads conversations on death and dying ahead of Dying Matters Week 2024
As Dying Matters Week approaches from May 6–12, 2024, Pilgrims Hospices gears up to lead conversations on #TheWayWeTalkAboutDyingMatters.
This annual event aims to empower people to engage in honest conversations about death and dying with healthcare professionals, family, and friends.
This year, Pilgrims Hospices is taking a proactive stance by bringing discussions to the forefront. Through the use of chalkboards, the charity will facilitate the ‘Before I Die’ conversations in key locations in Canterbury and Thanet. These conversations will focus on addressing fears and worries surrounding death and dying, as well as planning ahead for grief and loss.
“We believe that open conversations about death and dying are crucial for individuals and communities to navigate these challenging topics with dignity and understanding,” said Sophie Van Walwyk, Head of Psychosocial and Bereavement Services at Pilgrims Hospices. “By providing platforms for dialogue, we hope to normalise discussions about end-of-life care and provide support for those facing these difficult realities.”
The events are scheduled to take place at the following locations:
Broadstairs Library, The Broadway, Broadstairs CT10 2BS Wednesday 8 May – 10:00am – 2:00pm
Whitefriars Shopping Centre, Canterbury Saturday 11 May – 10:00am – 2:00pm
All members of the community are encouraged to participate by sharing their thoughts and feelings about what is important for them to achieve before they die, on the chalkboards. Additionally, Pilgrims Hospices will be on hand to offer guidance and signpost attendees to relevant services and resources, including Pilgrims Hospices Stepping Stones bereavement services.
By providing platforms for dialogue, we hope to normalise discussions about end-of-life care and provide support for those facing these difficult realities.
Sophie Van Walwyk, Head of Psychosocial and Bereavement Services
“We want to inspire a compassionate and supportive community where individuals can express themselves freely and honestly,” added Sophie. “By encouraging open dialogue, we hope to alleviate some of the fears and stigma surrounding death, dying, loss and grief, and promote greater knowledge and understanding within our communities.”
Furthermore, Pilgrims Hospices offers Grief Awareness Training packages from their training centre in Canterbury. To find out more, visit: pilgrimshospices.org/courses
For more information about Dying Matters Week events and Pilgrims Hospices initiatives, please email [email protected].
Pilgrims Hospices is a charity providing specialist end-of-life care and support to individuals and their families across east Kent. With a focus on compassionate care and dignity, Pilgrims Hospices strives to enhance the quality of life for those facing life-limiting illnesses.
12th May 2023
If Dying Matters – then it matters at work, too
We spend so much of our lives at work, and we shouldn’t have to hide our experiences of death and dying from our colleagues, our peers, or our bosses. Starting a conversation about dying is often not as hard as you might think.
During Dying Matters Awareness Week, Pilgrims Hospices encourage the community of east Kent to talk about death, dying and grief in the workplace. Each year during the month of May, hospices across the country take time to share support for those struggling with the subject of death and dying. Grief is a natural, normal, and necessary reaction to loss, but one that can feel overwhelming and have a huge impact on someone’s life.
It is estimated that as many as nine people will be affected by the death of one person – family, friends, neighbours or a colleague. At some point, every one of us will experience grief, or know someone who has suffered a bereavement. Information and support from Hospice UK indicate that 57% of employees will have experienced a bereavement in the last five years, and every day, more than 600 people leave work to look after older and disabled relatives. And yet, fewer than one in five managers feel very confident supporting someone they manage with a bereavement.
Sophie Van Walwyk, Pilgrims’ Head of Psychosocial and Bereavement Services said:
“The hospices’ staff are many and varied, all of whom can at some point be in contact with supporters, shoppers, family members or visitors, who have experienced, or are experiencing sadness due to the loss of someone close to them. We offer any staff and volunteers who regularly have contact with bereaved people, the opportunity to access our Grief Awareness introduction training.
“We are most particularly interested to ensure our retail colleagues, who work in our shops, drive our vans and support with house clearances, can develop communication skills, to support bereaved people who may be distressed whilst using our shops and services. The feedback from colleagues who’ve been helped to understand how the grief process works, has been really encouraging, so much so, that Pilgrims is launching Grief Awareness Training for businesses and community groups, to help their own staff, and members in supporting colleagues, who are affected by grief following a bereavement. The session includes:
Understanding how the grief process works, what normal grief looks like, and when grief reactions may be unhealthy
Recognising the need for bereavement support and where to turn
Developing communication skills to support bereaved people who may be distressed
The Grief Awareness training course is available on the following dates:
Dates and locations:
Wednesday 12 July 2023, 14:00-17:00 at the Ann Robertson Centre, 55 London Road, Canterbury CT2 8HQ
Thursday 26 October 2023, 16:30-19:30 at the Ann Robertson Centre, 55 London Road, Canterbury CT2 8HQ
Tuesday 30 January 2024, 14:00-17:00 at Pilgrims Hospice Ashford, Hythe Road, Willesborough, Ashford TN24 0NE
Thursday 25 April 2024, 16:30-19:30 at Pilgrims Hospice Ashford, Hythe Road, Willesborough, Ashford TN24 0NE
Each year, Pilgrims Hospices give care and comfort to thousands of people in east Kent who are coming to terms with an illness that sadly cannot be cured. The charity support patients to live life as well as possible until the very end, free from pain and distress.
8th November 2022
What is an eco funeral?
Eco, natural, or modern funerals, are terms often used to describe a funeral that tries to be more environmentally-friendly. Most of these options aren’t new, but they are becoming more widely available and increasingly popular.
Elle Hogben from Willow and Green Funerals explains just some of the ways that funerals can have a lighter impact on the planet.
People choose eco funeral options for many different reasons.
Some want to lessen their impact on the environment as they die. Others like the idea of being naturally returned to the earth, and enjoy a simpler way of doing things. And some people just like the aesthetic that comes alongside a more natural method; perhaps they love being outdoors or in their garden.
Natural burial grounds
In 1993, Ken West formulated the first woodland burial grounds – areas of cemeteries with no headstones that would have trees planted and be left wild. The popularity of natural burial grounds has grown significantly since then, and continues to do so. There are now over 220 recorded natural burial grounds in the UK. Some council-run cemeteries have designated an area for natural or woodland burials. There are also natural burial grounds on privately owned areas of land, and they can be beautiful, peaceful places to visit.
Their goal is often to create and preserve a natural habitat for wildlife, and try to avoid any non-biodegradable elements, so that everything is naturally returned to the earth. Each burial ground differs on what they allow, and your funeral director or the burial grounds staff will be able to guide you.
The coffins used are usually made with completely biodegradable components, and the same goes for flowers, including no plastic or oasis (also called flower foam), which is a non-biodegradable plastic. Traditional gravestones are not permitted, but most cemeteries allow smaller wooden markers or something similar. Often, a tree or plant of some variation is planted next to or around the grave. The woodland and natural landscape make beautiful surroundings for a funeral service, or for the scattering of ashes.
What does an eco coffin look like?
Natural coffins include materials like willow, bamboo, or seagrass, and are really beautiful. These coffins are completely biodegradable, including their fixings, linings and handles. The lattice method of weaving the coffins also provides a great opportunity for adding flowers. There are even some coffins that are grown and made in the UK, reducing the carbon footprint, including some particularly lovely willow farms in Somerset.
Cardboard is one of the most efficient and cheapest eco coffin materials. For me, a personal favourite is when families choose to have white or neutral cardboard coffins, allowing family, friends and children to draw and write messages on the coffin. Or, how about a coffin with pictures of cats for a cat lover? These coffins provide a great opportunity to personalise a funeral, and get the whole family involved in a precious moment.
One of the most simple options is a shroud. Shrouds are usually made from natural materials such as cotton, linen, silk and many more. Families can then lay flowers and decorate the shroud in the same way they would a coffin. These are such personal choices, which is why it’s a good idea to think about what you might want, to make these hard decisions a little easier for your family.
Funeral flowers have always been a large part of the traditional funeral, from flowers accompanying the hearse, to flowers gifted by mourners. People often ask for donations to charities instead of gifted flowers, or sometimes a mixture of both.
Whilst flowers themselves are biodegradable, oasis is a common element of flower displays, and therefore many traditional displays are not biodegradable. The RHS flower show banned oasis from their displays in 2021 because of its harmful impact on the environment. Fortunately, there are alternatives, such as moss. The majority of florists now provide at least some eco-friendly options. Unfortunately, we only grow certain flowers in the UK at various times of the year, so understandably flowers often have to be imported from across the globe. Chat to a florist or your funeral directors about what flowers they can source more locally at specific times of the year.
Local flower farms are wonderful places to visit; some even allow families to come and browse and choose flowers to be made into tributes. A local florist told me that families sometimes request for bulbs to be added to the floral displays. The family can then take these home and plant them in their gardens – what a beautiful way to reuse funeral flower displays and remember a loved one. A lady once showed me a wonderful display of dried flowers she had made for her mum. I was surprised at how much colour and vibrancy the flowers still had. When dried, flowers can be taken home and shared with the family and enjoyed for a lot longer. It’s great to see that the options available to families are growing.
There are also creative alternatives to flowers.
For example, for a football fan, how about a football shirt on the coffin? I recently saw a Star Wars fan’s funeral had pallbearers dressed as stormtroopers and a Lego Star Destroyer on the coffin (although Lego is made from plastic, the figure may have belonged to the family and have been kept by them afterwards; it would have been removed before burial and therefore wouldn’t impact on the natural environment); how creative!
There are some wonderful craftspeople out there who make beautiful things, like paper flowers made from recycled books that the family can keep forever.
There is no right or wrong answer, and families often come up with some beautifully unique ideas.
Customising a funeral: Orders of service, ashes and more
Orders of service can be made on recycled paper. A wedding I attended used beautiful seed paper for the wedding order of service; the paper is usually made from recycled materials and embedded with herb, vegetable or flower seeds to be planted. This is a lovely idea that reduces waste and can be adopted for funerals, giving guests something special to take home and remember their loved one by. And remember, just because orders of service are a traditional part of a funeral, doesn’t mean they are essential. You might decide to have a single order of service placed for all to see, or send out an electronic version.
A biodegradable urn
There are many beautiful options when it comes to deciding what to do with loved ones’ ashes. Some people like to plant the ashes in urns, and maybe even grow a tree near them. Arboform urns are a great option that will start to naturally biodegrade. However, they can also be used as a display urn, because they will only start to biodegrade when planted in the ground. This eco option comes in a wide range of shapes and beautiful styles; they are often cheaper than some metal, ceramic and wooden urns.
It’s exciting to see the increased use of electric hearses in the funeral industry. But what about all the guests attending? A simple idea such as carpooling is a great way to reduce funeral guests’ carbon footprint. Often, this allows families to spend more time together, and it’s a way of respecting and honouring the wishes of the person who has died, if their preference was for an eco funeral.
These are just a few of the many ways that a funeral can be more eco-friendly. The most important part of arranging any funeral is empowering the family to have choices. As a funeral arranger, it is our job at Willow and Green Funerals to source a wide range of options for families to achieve whatever they want. Traditional funerals still play a big, important part in the funeral industry. All we hope is to show people that they don’t have to sacrifice this in order to be more environmentally conscious.
Elle Hogben
Elle Hogben is a funeral arranger working for Willow and Green Funerals, an independent funeral home in Ashford, Kent. Willow and Green believe in providing personal, high-quality funerals that don’t cost the earth. Elle feels it is a privilege to be able to help people through one of the hardest times of their lives.
Elle has been attending Pilgrims Hospices events for many years with her mum, Annie. She is always impressed by the amazing and vital work that the staff at the hospice do.
There’s much more to death than we think; what if it isn’t just an ending, but an event we can plan for? Thinking beyond the four walls of hospices and hospitals, we have the chance to approach it with confidence and plan a good death. After Wards is a collection of insights and ideas from people who can help us all to re-imagine this essential part of life, and to live well until we die.
4th May 2022
What is a digital legacy and how can you manage yours?
We live in a digital world, which offers increasing opportunities to connect with others and share our lives. But what happens to our digital life when we die?
Why it’s important to make plans for your digital life and share them
Technology, the internet and use of connected devices (like mobile phones) has changed many things. It has changed the ways in which we communicate with our friends and family members, it is now changing the ways in which we plan for death and remember our loved ones.
There are a number of things that we can do in advance to help make sure that assets held within online accounts (often called digital assets) are not lost and do not become inaccessible when you die. Digital assets might include sentimental photos and videos held within social networks and cloud storage devices. Digital assets of a financial value might include shopping points, purchased songs, cryptocurrency and eBooks.
Making plans for your digital life can help reduce the amount of time, hassle and confusion that might take place after your death. This may be experienced by a loved one trying to locate your accounts and retrieve content, digital assets and information held within them.
Think
Think about the social networks, online-only bank accounts, cloud storage accounts and any other online accounts that contain your digital assets. Think about what is important to you within these accounts and whether the assets held might also be important to your loved ones after your death.
Think about the passwords on your mobile phone, laptop and other devices. Now think about the passwords you use for your online accounts. Do you want someone else to have access to your password-protected devices and online accounts, or would you be comfortable if access is not transferred? If access is not transferred, accounts are likely to remain inactive and the content within them inaccessible. What might the impact be on others if accounts become inactive and the content contained within them becomes inaccessible? What might be a good and safe way for you to grant access to someone else for some or all your devices and online accounts?
Certain online accounts and social networks now have their own way in which you can pass on different levels of access. Planning might be very different for each social network, online bank account and online account. A number of tutorials to help you make plans for the most commonly used social networks, platforms and devices used in England can be found here.
Plan
It is important that you make plans for your online accounts and password-protected devices. Plans can be made in a number of ways. These might include using the free planning platform MyWishesto log and share wishes within a ‘Social Media Will’ (sometimes called a digital will). Another way is to download an Excel template to document your online preferences; this can be downloaded by clicking here. If you have assets of a financial value (stocks, cryptocurrency etc.) you should also include them within your Last Will and Testament.
Share your wishes
It is important that you share your wishes, whatever they might be. Some wishes might be expressed through conversation. Conversations about your digital wishes might take place before you start making plans, whilst making plans or afterwards.
When plans are written down or documented online, it is very important that they are shared with at least one other person. When it comes to sharing wishes about your digital life, you might assign a partner, friend, child or a grandchild to manage the administration of them after your death. This person is sometimes referred to as a ‘digital executor’.
You might want to print copies of your wishes and keep them in a safe and accessible place within your home.
What happens next?
Once you have made plans for your online accounts and shared your wishes, you might experience feelings of accomplishment and happiness. These feelings may occur because your wishes are more likely to be adhered to when others know what they are. By making plans, you might also have a positive influence on your digital legacy. A digital legacy is the digital information that is available about someone following their death. Forward planning can influence your digital legacy in a number of positive ways. These might include ensuring that your favourite photos of you remain accessible, and your favourite stories that accompany one or more photos are told.
Making plans for your digital life is an altruistic task. Following your death, your loved ones might benefit both emotionally and financially by your forward planning. The confusion of trying to locate your online accounts and digital assets might be reduced after gaining an understanding of what was and was not important to you. Assets of a financial value might also be safeguarded and less likely to be lost or become inaccessible.
James Norris
James Norris is the founder of theDigital Legacy AssociationandMyWishes. James researches and develops end-of-life technologies, apps and websites. He also organises the annual, international Digital Legacy Conference and publishes regular tutorials helping to empower both professionals and the general public.
James has consulted various governments and non-governmental organisations. He provides thought leadership in areas relating to digital death, bereavement, technology and the internet. He has been featured in publications such as the New Scientist and spoken on various TV programmes including Breakfast on BBC 1.
There’s much more to death than we think; what if it isn’t just an ending, but an event we can plan for? Thinking beyond the four walls of hospices and hospitals, we have the chance to approach it with confidence and plan a good death. After Wards is a collection of insights and ideas from people who can help us all to re-imagine this essential part of life, and to live well until we die.
2nd May 2022
An African Way to Die
Photograph: A Sunset in Africa by Tim Heywood
George Gumisiriza is a PhD student based at the Centre for Death and Society (CDAS) at the University of Bath. His ongoing research is titled Repatriationscapes: Afrocentric perspectives on death and body repatriation among the African diaspora.
For Dying Matters Awareness Week (2-6 May 2022), we asked him to share his thoughts on what it means to be in a good place to die.
Paul’s socks
Repatriation is the process of returning an asset, an item of symbolic value, or person – voluntarily or forcibly – to its owner or their place of origin or citizenship. As an African who has lived in the UK for 10 years, I draw on my own experience of grief after loss as part of my research.
In December 2013, my cousin Paul, aged 48, returned to Uganda to die after 20 years in the UK. Paul had AIDS after contracting HIV in the 1990s. He died in April 2014. Paul’s last words to me about his decision were: “This winter is going to be very cold in England. I’ve got you a pair of socks and a scarf to keep you warm. I’m going home to Uganda and will stay there until summer next year.” Paul often said that Africa was his homeland and London was his place of dwelling. Paul knew that his death was close. The pair of socks and scarf symbolize both our grief and consolation. Material objects of memory can be helpful in handling grief after loss.
Recently, long illnesses and stigmatized diseases such as HIV have prompted people to think about how and where we die. However, what does it mean being in a ‘good place’ to die? How do things hold together in the face of death, and grief after loss?
African rituals
Like my cousin Paul, my thoughts about being in a good place to die are connected to my African sense of belonging. When I think on my death bed, I envisage people visiting me. I imagine people crying loudly after my last breath and people gathered in the courtyard for the funeral. Huge log fire at my funeral wake, a condolence book, and a basket for collecting the money. Mourners make contributions in cash, in kind or both because in African death ways bereavement is shared. I imagine the men digging the grave in the banana grove, talking about recent community misdemeanour. Grave digging in most Ugandan cultures is an opportunity for self-reflection and correction. The senior family head chooses the spot for the grave. The other seniors sit around to supervise the process as the younger men dig the grave in turns. Local brew of alcohol and a meal are served at the site. I see the women cooking food – receiving baskets of cooked food from the neighbours – young adults serving all the mourners.
Finally, I hear the loud cries of women as men carry my corpse to the grave. I hear dried banana leaves as crowds struggle to find their way and space around the grave. As the coffin is lowered, I hear the competing sounds of mild argument – panic, and loud wailing of mourners. Believers may try to restrain people through singing of hymns, but women – widows and bereaved mothers – are often unstoppable. Men do cry loudly too, in some cases. For many Africans, like my cousin Paul, the place and space are important for such rituals and practices.
Like my cousin Paul, my thoughts about being in a good place to die are connected to my African sense of belonging. When I think on my death bed, I envisage people visiting me. I imagine people crying loudly after my last breath and people gathered in the courtyard for the funeral. Huge log fire at my funeral wake, a condolence book, and a basket for collecting the money. Mourners make contributions in cash, in kind or both because in African death ways bereavement is shared. I imagine the men digging the grave in the banana grove, talking about recent community misdemeanour.
George Gumisiriza
My Masters research on death and body repatriation among Gambians in Wales (UK), revealed many similarities between their West African experience and mine, rooted in collective understanding of home as the land of birth. Gambians support their dying folks to return to the Gambia before death. However, this is not always possible, and sometimes corpses are repatriated after death. Gambian Muslims prefer to bury their dead in Muslim-only cemeteries where, as one interviewee told me, all the rituals are fulfilled. Other participants mentioned having prayers over the grave every morning and relatives visiting every day. This combines cultural and religious ways of grief and the meaning of being in a good place to die for the dying and the survivors.
Returning home
The idea of dying at home is popular among Africans as a physical place and space to die. ‘Home’ as a place combines the support from relations beyond the immediate family. Home is thought to provide the sense of comfort and security that people enjoy in good times. In moments of weakness, despair, and hopelessness due to terminal illness, home as a familiar place presupposes reassurance to control the situation. While not all people prefer dying at home, in Africa, returning an elderly person home from the hospital means two things: either the person has recovered, or the patient has demanded to return home to die. Whichever the case, home is considered a ‘convenient place’ to offer social support. Sometimes, spiritual leaders and medical professionals visit to offer their services. Migrants with such preference might find ‘home’ as a physical place to die challenging due to lack of social support available in their place of birth, where social connections with them have become thinner.
The Ranges of Snow-Capped Mt. Rwenzori in Uganda by Tim Heywood
In African cultures, the space in a dying person’s home focuses on the person, the dying process, and the event of death. The dying individual occupies space that is well lit and accessible. Social and cultural norms oblige folks to visit the dying. Despite the absence of death in open conversation, people act quickly when death is imminent. Responding to the dying’s social needs is prioritised to avoid regrets. Some activities outside the physical space consider how death may affect their plans. Banyoro / Batooro people in Western Uganda say, “taraleho – tasibeho” referring to imminent death by “sunrise or sunset.” Low-tone dying pep-talks of prompts and reminders about visiting the dying individual are common.
Abating the crisis of death
My native Runyoro / Rutooro language draws similarities between a ‘good death’ and the grave: the saying, “Olifa kurungi ogisanga hamunwa gwekituuro,” means a ‘good death’ is determined at the ‘mouth’ of the grave. The saying refers to both the individual and collective meaning of ‘a convenient place’ to die. Death very often causes chaos among the survivors. Some Africans seek practical ways to minimise the disorganisation that often follows death occurrence. Repositioning the dying to somewhere perceived as a ‘convenient place’ to die is widespread among African diaspora, for example, moving from urban back to rural homes to die is common. The other way is repatriation of the corpse after death for funeral rites and rituals. The difficulty in body repatriation involves cross-border regulations and excessive costs.
In African cultures, the space in a dying person’s home focuses on the person, the dying process, and the event of death. The dying individual occupies space that is well lit and accessible. Social and cultural norms oblige folks to visit the dying. Despite the absence of death in open conversation, people act quickly when death is imminent. Responding to the dying’s social needs is prioritised to avoid regrets.
George Gumisiriza
Repatriating a corpse is much more expensive than repatriating a living person. Yasmin Gunaratnam has fascinating stories about this, including a dying person snatched from their hospice bed by their family to put them on a flight home to die: the hospice had refused the request, as it considered the patient too ill to move. Another example in her book is a family who put a corpse in a wheelchair, and accompanied it on the plane, pretending the body to be living as they could not afford the cost of repatriation after death.
My cousin Paul was a professional dancer who loved pop-culture that embodies Afro-Western narratives, fashion, elegance, and creativity. Paul’s decision to return home was about his need to retain respect and dignity in the face of death. The Ugandan singer Philly Lutaaya’s song Alone and Frightened, which became “The Aids Anthem” in Uganda, describes the meaning of being in a ‘good place’ to die. The story starts with his personal grief and the need for resilience, emphasizing his longing to belong. In 1989, Philly returned to Uganda from Sweden and died in the care of his family.
Rivers of fresh water from the Mt. Rwenzori by Tim Heywood
Other cultures
Many cultures share some common thoughts about a good death. First, the visibility of the dying individual and the illness. Second, dying as a process, death as an event, and after death as rites or ceremonies. Third, the survivors and the practice within the place and space. In a recent case, the neuroscientist Dr. Nadia Chaudhri, a professor of Psychology at Concordia University in Montreal, Canada, died from ovarian canceron October 5, 2021.
In the final weeks of her life, Nadia daily shared her story online via her Twitter account (@DrNadiaChaudri), from her palliative care ward. Towards the end, Nadia said, “I will feast in my new life and welcome everyone to my forest table” (@DrNadiaChaudhri, 13 September 2021).
Nadia’s story indicates how she took control of a difficult situation reaching out to the world. She cared about the grief of the survivors after her death through her trust in the place, the space and the people who cared for her. Nadia Chaudhri – a migrant to Canada from Pakistan, she had a good dying not in her Pakistani home, but with her family in Canada, and finally in a Canadian palliative care ward. That for her was a good place.
In African death ways, repositioning dying individuals protects them from being excluded from cultural funeral rites after death. Both my cousin Paul and the singer Philly reassured themselves of being incorporated among the dead on the ancestral grounds. Paul’s socks kept me connected to other grieving survivors at home after his death. The work of my friend and fellow doctoral candidate Katie Taylor in mending the hole in my socks demonstrates support across cultures, based on shared experiences of death, dying and grief.
George Gumisiriza is pursuing a PhD in Social and Policy Sciences, funded by Economic and Social Research Council (ESRC) and the University of Bath. He is based at the Centre for Death and Society (CDAS). His PhD thesis is Repatriationscapes: death and body repatriation among African diaspora in the UK. His work focuses on Afrocentric perspectives on death.
George has a Master of Research in International Development (distinction), (University of Bath in 2021), a Master of Science in Social and Cultural Theory, (Merit) (University of Bristol, UK 2020) and Bachelor of Education (Honours) from Makerere University, Uganda.
There’s much more to death than we think; what if it isn’t just an ending, but an event we can plan for? Thinking beyond the four walls of hospices and hospitals, we have the chance to approach it with confidence and plan a good death. After Wards is a collection of insights and ideas from people who can help us all to re-imagine this essential part of life, and to live well until we die.
10th May 2021
#InAGoodPlace: Preparing for death, dying and bereavement
What does it mean to be in a good place to die? This is the question we were asked to consider during Dying Matters Awareness Week (10-16 May 2021). Pilgrims staff share their thoughts, both from a personal perspective and based on their experience working alongside hospice patients who are approaching the end of life.
Oden, Physiotherapist
For me, being in a good place to die means being at peace.
As a society, we’re not encouraged to think about our death even though it is probably going to be one of the most important experiences of our life. People often say, ‘Stop being morbid’ or think it’s bad manners to talk about death, or that by talking about it we will “tempt fate”, but the truth is we were always going to die. Then because we have lived our lives as if it was never going to happen, we are in denial and often completely unprepared – both for our own death and the deaths of those we love. We don’t know how to cope because it’s all done behind closed doors, and as such it can make the unknown a fearful experience.
We need to talk more about dying so that we can support our hospice patients and their loved ones, and also cope when we eventually experience it for ourselves.
As a Buddhist nun, I contemplate my own death each day for two reasons; firstly, I will not be surprised if it happens suddenly, and secondly it helps me to appreciate each day. In this way, I hope my mind will be more peaceful and I will therefore be in a good place to die.
Justine Robinson, Lead Occupational Therapist
For some people, a good place to die might mean being able to stay in their own home. Occupational Therapists can help hospice patients plan for this by adapting the environment and providing specialist equipment to help them remain at home. They work alongside patients and families to enable them to continue doing the things that matter most to them for as long as possible.
Having a life limiting illness often leads people to reflect on what they will leave behind. As well as material objects, this could also include memories, precious moments and the things that make you, you. The legacy work we do at Pilgrims is a way of turning some of these thoughts into actions or tangible keepsakes. It not only gives loved ones something precious to hold on to, but can also provide patients with the time and space to reflect; they can find peace and meaning while coming to terms with dying.
Pilgrims’ Wellbeing team work with patients and families to create legacy projects. This can take many forms, including memory boxes, writing, arts and crafts and recording stories as part of our Blackbird Project. Whatever a patient chooses will become unique to them, carrying the meaning they put into it.
Martyn Yates, Spiritual Care Lead
What does it mean to have a ‘good death’? What does it mean to be in a ‘good place’ to die?
Death and dying is as individual as each one of us. If we don’t acknowledge that we are all going to die at some point and we don’t talk about it, we will probably find it hard to start those important conversations, have a ‘good death’ and be in a ‘good place’ when we die.
World War I saw the deaths of hundreds of thousands and immediately after that we had the Spanish Flu, which killed some 200,000 in the UK. Then came World War II, when almost every family lost someone. Finally, in the late 60s Hong Kong flu killed some 80,000 in the UK. We stopped talking about ‘death’ and started using phrases like ‘they passed away’ or ‘popped their clogs’. It is as if we have gone into a collective silence about death and have handed it over to ‘the professionals’.
As Baroness Julia Neuberger has said: “We need to learn to look death in the face again – it is coming for us all.”
That is why I see things like theDeath Cafemovement and Hospice UK’sLet’s talk about dyingprogramme as beneficial. Talking about death and dying doesn’t bring death closer. It’s about planning for life, helping us make the most of the time that we have – it’s about celebrating life.
We plan for and celebrate every birth, so why not do the same for every death?
Dying Matters Awareness Week is a chance to come together and open up the conversation around death, dying and bereavement.
There’s much more to death than we think; what if it isn’t just an ending, but an event we can plan for? Thinking beyond the four walls of hospices and hospitals, we have the chance to approach it with confidence and plan a good death. After Wards is a collection of insights and ideas from people who can help us all to re-imagine this essential part of life, and to live well until we die.
