Ninety-Nine Days: A story of the Benjamin’s voyage around Britain
Retired doctor and sailing enthusiast generously donates his book royalties to Pilgrims Hospices. Irving Benjamin’s book Ninety-Nine Days has so far raised over £400 for the end of life charity who cared for his late wife Cate.
Irving hopes this will be the first of many donations from the book royalties.
Irving is a retired surgeon, having worked as a Professor of Surgery and head of department at King’s College Hospital from 1990 until he took early retirement in 2006.
Originally from Scotland, Irving lived in London from 1979, and moved to Deal with his first wife in 1997. Sadly she died suddenly in 2000, and he married Cate in 2006 having already known her as a good family friend.
Irving said: “I had taken up sailing in the 1990s, Cate and I bought our 33 foot yacht ‘Vega’ together, and enjoyed coastal and cross-channel sailing. We made our first trip around Britain in 2007, helped by a number of friends aboard at various times, but it was in that year that Cate discovered the breast cancer which was to change our lives for a number of years. We interrupted our travels, over wintered Vega in Inverness, and returned to London while Cate underwent treatment. We did some sailing in the Netherlands in 2008 and the following two years, but when Cate was discharged from follow-up in 2012 we decided to complete our around Britain trip including the north coast of Ireland, the Inner Hebrides and Orkney.
“The whole trip lasted Ninety-nine Days (the title of the book), and I kept a detailed illustrated blog, and later edited the text and illustrations of the log into a book, with Cate’s help and critical assistance. I promised Cate that we would publish it together; I had hoped that would happen during her lifetime, but sadly I was not able to make that deadline.
“Cate developed recurrent disease in 2016, and underwent further treatment, mostly at Kent and Canterbury Hospital. As her disease progressed she required the support of Pilgrims Hospices; with regular phone calls and personal visits from hospice nurses and from Dr Andrew Thorns.
She had a beautiful non-religious ceremony performed by a wonderful doula, and is buried in a lovely location in Deal cemetery, in what will eventually be our double grave.
Irving
“By June 2020 it was decided that no further active treatment was indicated, and from around that time she was practically bedbound. In accordance with Cate’s wishes we had decided that she would remain at home with me for as long as it was possible, and preferably to die in our own bed. The care we received from Pilgrims community care team was absolutely second to none, and it was helpful that as a retired doctor I was able to manage symptom control alongside the other carers. I was with her all of this time, prepared food for us to share, and read books to her in bed. Luckily, this all happened before the most severe strictures of the lockdown, so she was able to have a few short family visits. She became quite confused in the last two to three weeks, and died quietly in bed in the early hours of 14 September. She had a beautiful non-religious ceremony performed by a wonderful doula, and is buried in a lovely location in Deal cemetery, in what will eventually be our double grave.”
“We have the most wonderful extended family, Cate has two children living in Deal, with grand-daughters aged six and eight, and two children in Canada, with an eight-year-old grandson. I have two children of my own in the UK, and one in Australia, and between them four grandchildren aged between 13 and 29! They are generous with their love and support and I’m comforted to have them all.
“We enjoyed music together and would go to festivals whenever we could, including Glastonbury. We were also regular supporters of Scottish and South African rugby (Cate was born in Durban), and went to all the games at Murrayfield and a few in Paris, Rome and Dublin.
“Although I didn’t manage to publish our adventures before Cate passed away, it’s now published through Amazon Kindle Direct Publishing. It’s available both as an e-book, and a paperback. The paperback is a much nicer publication, because the e-book does not do justice to the lavish colour illustrations and the glossy cover, but unfortunately Amazon pass on the high printing costs for the paperback, which puts the price up a lot in order to be able to make enough in royalties to pass on to Pilgrims Hospices. I’ve just received my first royalties, and I am able to pass on the whole sum, which is now just over £400, hopefully as the first instalment of many. I’m keen to have the book sold as widely as possible, in order to boost the donations, so the more publicity it can get the better.
“After Cate’s death we set up an online tribute page, which has raised over £1,000 for the hospices. In addition, a group of us have been writing together for the last couple of years as Deal Poets Society, and we launched our first anthology, Love, Life, Loss at the end of 2019, with a celebration at The Lighthouse in January last year. Again, all the proceeds from that work have gone to Pilgrims Hospices; we are planning a second volume for the end of this year.”
Benj (Irving Benjamin)
Dying Matters Awareness Week is a chance to come together and open up the conversation around death, dying and bereavement.
Tell your story and join in the conversation on social media using the hashtags #InAGoodPlace and #DMAW21.
Pilgrims Hospices host community events throughout the year for the general public, aiming to open up the conversation about death and dying; with film screenings, poetry readings and Death Cafes and much more, there’s something for everyone.
Each year Pilgrims Hospices give care and comfort to over 2,500 people in east Kent who are coming to terms with an illness that sadly cannot be cured. The charity support patients to live life as well as possible until the very end, free from pain and distress.
11th May 2018
Dying Matters Awareness Week: What can you do in your community?
Each year in May, Dying Matters Awareness Week provides an opportunity to place the importance of talking about dying, death and bereavement firmly on the national agenda.
In 2018, the week will run from 14 – 20 May; Pilgrims Hospices will be sharing knowledge and experience to get people talking openly about death during the week.
In 2017, nearly 600 events took place across England, sharing information with over half a million members of the public, and it’s hoped that even more events will take place during this year’s awareness week. The theme for this year is ‘What can you do in your community?’, focusing on how people can encourage supportive conversations about death, dying and bereavement in schools, the workplace, hospices and other community areas.
With the End in Mind
As part of this nationwide week, author Kathryn Mannix will join Andrew Thorns, Pilgrims Hospices Medical Director, for a discussion about her book With the End in Mind, a powerful collection of stories taken from her clinical practice working with people who have incurable, advanced illnesses. The event will take place on Wednesday 16 May at 6:45pm at Grimond Lecture Theatre 3, University of Kent, Canterbury CT2 7NP.
This event is now fully booked; keep an eye on our website, Facebook and Twitter for post-event coverage.
Death Cafe
Pilgrims Hospices will also host a Death Cafe on Thursday 17 May, providing an opportunity for people to come together in a relaxed informal café environment and talk about death and dying. It is not a bereavement or counselling session, rather a space to talk about a subject we often avoid as part of our daily conversations. The event takes place 5:30pm – 7:00pm at the Ann Robertson Centre, 55 London Road, Canterbury CT2 8HQ.
There are just a few spaces left for our Death Cafe, so book now if you’d like to come.
Talking about death makes it easier to plan for and to deal with it when it happens.
Mandy Williams
Mandy Williams, Pilgrims Hospices Head of Education and Training, explained: “Talking about death makes it easier to plan for and to deal with it when it happens. We would like to encourage as many people as possible to join us for a conversation over coffee and cake.
“Our goal is to create a friendly space where people can ask those questions about end of life care issues and coping with bereavement.”
Patricia Morley Award
Wendy Hills, Pilgrims Hospices Director of Nursing and Care Services, will soon be accepting applications for this year’s Patricia Morley Award for Improvements in End of Life Care. The award is open to nurses and allied healthcare professionals who work within Health, Social Care or Pilgrims Hospices in east Kent. This will be the second year that care professionals can submit a project plan or model of care that will improve end of life care.
The successful applicant will receive £1,000 towards the implementation of the project that will make a difference to patients being cared for in the community.
“Sharing information, bringing communities together and challenging peoples’ perceptions and concepts regarding living and dying well, is making a difference within our community”, Wendy explained.
Patricia Morley was the incomparable and inimitable face of nursing at the Kent & Canterbury Hospital for many years. She worked tirelessly to promote best practice in nursing and was a long-standing Trustee of Pilgrims Hospices.
Last year’s award winner, Jan Hyde, End of Life Care Facilitator for East Kent Hospital University Foundation Trust (EKHUFT), celebrates the roll out of the winning project – Comfort Care Packs – across three hospital sites in east Kent.
Comfort Care Packs
Jan told us: “The Comfort Care Packs have been designed to support the essential comfort and dignity of family members staying overnight with loved ones. The pack content is aimed at reducing anxiety in the relative who has no essential items to use but doesn’t want to leave the patient’s bedside. Some toiletries, a toothbrush and toothpaste are just a few of the items that can really make a difference to families at such a sensitive time.
The Comfort Care Packs have been designed to support the essential comfort and dignity of family members staying overnight with loved ones.
Jan Hyde
Last year saw the launch of the Compassion Project, a collaborative project between East Kent Hospital Foundation Trust and Pilgrims Hospices to promote a culture of compassion at end of life within the acute hospital settings at EKHUFT.
The partnership between the two east Kent health providers is improving end of life care for patients across east Kent. It continues to support hospital staff on more than 50 east Kent wards and departments, to give dedicated support to patients in the last days of life and work compassionately with their families.
All hospital staff who come into contact with patients and families at this incredibly difficult time are given training by Pilgrims nurses, and the hospital’s own end of life care experts, in the use of the Compassion symbol and are being encouraged to ensure it becomes part of the normal ward routine and culture when caring. The Compassion symbol is displayed discreetly on hospital wards when a person is in the final stages of life, providing hospital staff with an indicator to proceed with increased sensitivity and ensure visitors to other patients are respectful and courteous towards the patient and family in such a difficult circumstance.
Annie Hogben, Compassion Project Lead for Pilgrims Hospices, explained: “It’s so important to raise greater awareness of end of life care in hospitals. Pilgrims are working closely with hospital care staff to identify even further opportunities to ensure we provide expert services to patients and families. The collaboration is proving a continued success.”
We host Time to Talk community events throughout the year for the general public, aiming to open up the conversation about death and dying; with film screenings, poetry readings and Death Cafes and much more, there’s something for everyone.
To find out more about future Time to Talk events contact the Education team on 01227 812 616 or email [email protected].
If you or your family are experiencing Pilgrims care, find out about the support we can offer through our Wellbeing and Social Programme.