Let the music play on: Neil creates lasting legacy with the Blackbird Project
In 2019, Pilgrims Hospices launched the Blackbird Project, enabling patients to record messages for their loved ones to keep forever on special blackbird-shaped USB sticks. The project was started by Sheena and Nick Jackaman, whose son Ben received Pilgrims’ care.
When Neil Wright from Deal was referred to Pilgrims after being diagnosed with cancer, the charity helped him to make a recording for his wife, Pamela. Here, she shares why the Blackbird Project is so special.
When my father died suddenly in 1984, I longed to hear the sound of his voice again. We had a reel-to-reel tape recorder from childhood that Dad would use to sing and talk to us. Unfortunately, the tapes were old and fragile, so they became twisted and ravelled up when they played, and I was very disappointed to find they wouldn’t work.
Sadly, my late husband, Neil, was diagnosed with cancer in September 2019. I cared for him at home, and when he was unable to stand and walk, we had a bed downstairs so he could look out on his garden, which he loved. We liked watching the blackbird that visited there.
We became aware of the Blackbird Project when Neil was referred to and supported by Pilgrims Hospices, and saw the brochure they had designed and produced. During this time, in April 2021, Sara Hennessy, an occupational therapist at the Thanet hospice, came to our house and helped Neil to record a message for me that I could listen to in the future. I think this is an excellent service, giving terminally ill patients the opportunity and assistance to leave a personal message for their loved ones on a blackbird-shaped USB stick.
Neil was a talented musician and he contributed greatly to the community, giving his time freely to support the arts, theatre events and festivals in Kent, particularly in his hometown of Deal. Neil knew the Jackaman family, having taught Ben and Anna, his sister, during his career, and was sad to hear that Ben passed away aged 34 from cancer at Pilgrims Hospice Canterbury.
I have listened to my dear husband Neil’s Blackbird recording and it is wonderful to hear his voice. It brings me great comfort and is a treasured possession.
Pamela
As Neil’s illness progressed, we talked about Ben’s legacy and decided that when the time came, donations kindly given in remembrance of Neil should go to the Blackbird Project as it is such a wonderful idea.
On 11 August 2021, Neil was admitted to the Thanet hospice for pain relief, where he stayed for three weeks. All the staff were very compassionate and caring; they provided a welcoming and comfortable environment for us to be together during such a difficult time. Neil returned home with a care plan for support in the community.
His passion for music stayed with him throughout this time, until sadly he passed away at home on 12 October 2021.
I have listened to my dear husband Neil’s Blackbird recording and it is wonderful to hear his voice. It brings me great comfort and is a treasured possession. I’m sure many other patients and their loved ones who Pilgrims care for will continue to benefit as much as I have from this project in the future.
Pilgrims Hospices cares for thousands of local people each year, free of charge, during the most challenging time in their lives. They offer care and support in people’s own homes, in the community and in their inpatient units as well as running a 24-hour advice line.
10th October 2022
Therapy dogs make a welcome return to Pilgrims Hospices
Pets As Therapy (PAT) dogs are a vital part of Pilgrims Hospices’ wellbeing programme. Specially trained to remain calm and gentle when interacting with people, they make perfect visitors for patients and loved ones who are spending time in the hospices.
In September 2022, PAT dogs made a welcome return to Pilgrims after a two-year hiatus, having been unable to visit during the COVID-19 pandemic. Patients, staff and volunteers alike are truly grateful to have them back.
PAT animals provide companionship to thousands of people in settings across the UK, including hospices, hospitals, care homes, schools and prisons. They help to reduce anxiety and offer a pleasant distraction from the things that may be happening around them.
Rodney
Martyn Ponting from Sellindge brings his black labrador, Rodney (7), to the Ashford hospice. Rodney’s soothing presence is much-appreciated by everyone they’ve met since they started volunteering in 2017.
Martyn came across PAT animals when he worked in the pharmaceutical industry and regularly visited hospitals. He said: “I decided that when I retired, I wanted to get involved. We love coming to the hospice; Rodney puts smiles on everyone’s faces, even when they’re really poorly. Most patients want to see him, and the staff love him, too. He cheers everyone up.
“He’s just a normal dog at home, but at the hospice he senses the mood and immediately calms down. On our first day back since COVID, we visited a patient who was very near the end of life. We didn’t stay with her for long, but afterwards a nurse told me it was the first time they’d seen that patient smile. Rodney is also great for visitors, helping to break the ice and providing a different focal point at an otherwise difficult time.”
Rodney is such a well-loved and vital part of the Pilgrims’ team that he even has his photo up next to the consultants on the staff board.
Martyn added: “He has a gift for it, but he’s often a little tired afterwards because he takes on peoples’ moods – but perhaps in doing that, he lifts a small weight from their shoulders, so it’s all worthwhile. And he soon bounces back!”
Aston
Linda Wolek-Went and her husband, Mike Went, from Seasalter visit the Canterbury hospice with their Tibetan Spaniel, Aston (4).
Linda first volunteered for 15 months with their dog Bobby, who has now sadly died. After COVID dashed their round-the-world adventure plans, they returned to east Kent and decided to take on more rescue dogs. Aston and his brother, Martin (2), were rescued from Hungary, and Martin is currently in training to join the PAT dog team.
Linda was a volunteer receptionist at the Canterbury hospice for many years, and a schoolfriend of hers was cared for by Pilgrims, so she has seen first-hand what a difference the charity makes.
She said: “The comfort PAT dogs give to people is so uplifting and worthwhile. It’s a big commitment, but we’re retired and it’s a lovely way to spend our time.
“When Aston and I arrive at the hospice, we say hello to staff, volunteers and visitors in reception; they get as much enjoyment from it as the patients. Then, we go on the ward. All the patients love seeing Aston; even if they’re not feeling well, they still enjoy spending time with him.”
Wendy Kelk, Hospice Services Manager, said: “The team were filled with excitement, and some relief, when I announced the PAT dogs were returning to sites after COVID put their visits on hold.
“When the dogs are on site, the whole mood lifts; patients, visitors, volunteers and staff are smiling and requesting to see the dogs. They are very much a vital part of our team. Thank you so much to the dedicated owners for their time, hard work and willingness to return.”
We are delighted to welcome Rodney, Aston and their owners back to Pilgrims. We’re in the process of recruiting a PAT dog for our Thanet hospice, so that patients and visitors on all three sites can enjoy the same therapeutic benefits that PAT dogs bring.
To find out more about the Wellbeing services offered at Pilgrims, visit:
Hospice Care Week is an annual event where we recognise and celebrate Hospice UK and hospice care nationwide. It’s an opportunity to show the world the value of support, of care and of what matters to us as individuals at the end of life when we need it most.
Pilgrims Hospices cares for thousands of local people each year, free of charge, during the most challenging time in their lives. They offer care and support in people’s own homes, in the community and in their inpatient units as well as running a 24-hour advice line.
7th October 2022
Angela enjoys getting creative with Pilgrims Hospices
Angela Clarke from Westbrook near Margate attends weekly Time to Create sessions at Pilgrims Hospices, which offer fun, creative activities aimed at improving patients’ wellbeing.
She is enjoying creating artwork, meeting new friends and experiencing a different side to hospice care that she didn’t know about until coming to Pilgrims.
Through being referred to a Pilgrims breathlessness management course by a nurse at Guy’s Hospital, London, Angela heard about the charity’s wider wellbeing services and was keen to find out more. She was introduced to Billy Williams and Kyla Szukala, Wellbeing Practitioners, who welcomed her to the Time to Create group at the Thanet hospice.
I always thought hospice care was just offered at the end of life, and there was a fear around it. How very wrong I was. It’s friendly; we’re all struggling, but you can lose yourself for a few hours and just be.
Angela
Angela said: “I’m a complete novice, but I’m really enjoying it. We’ve worked with acrylics, watercolours and pastels, made Easter wreaths and done a project for the Queen’s Platinum Jubilee. We also made felt teddy bears; I didn’t finish mine in the group because I had to go to hospital, but I took it with me to work on during my stay, and it helped to keep me busy and take my mind off things.
“Having a finished product is lovely, although that’s not what matters really – it’s the taking part and enjoying others’ company. It’s nice to be away from home and spend time with different people. I look forward to the Time to Create groups, and I miss them when they don’t run.”
Angela also takes her newfound creativity home with her; after using watercolours in the group, she now paints the fruit and flowers in her garden.
She added: “I always thought hospice care was just offered at the end of life, and there was a fear around it. How very wrong I was. It’s friendly; we’re all struggling, but you can lose yourself for a few hours and just be.”
To find out more about the Wellbeing services offered at Pilgrims, visit:
Hospice Care Week is an annual event where we recognise and celebrate Hospice UK and hospice care nationwide. It’s an opportunity to show the world the value of support, of care and of what matters to us as individuals at the end of life when we need it most.
Pilgrims Hospices cares for thousands of local people each year, free of charge, during the most challenging time in their lives. They offer care and support in people’s own homes, in the community and in their inpatient units as well as running a 24-hour advice line.
4th October 2022
Time to Create: World Space Week
Inspired by World Space Week, we got creative with chalks, oil pastels and glitter to make beautiful space scenes.
It can be a challenge to get the creative ideas flowing; in our Wellbeing groups, we like to use a theme to help with this. Using images of planets, nebula and stars as a starting point, we began working on black card to develop participants’ own artistic interpretations of space.
Using black card enables the pastels and chalks to really jump off the page, creating a colourful and magical representation of space. The great thing about an activity like this is that it can be as abstract or as real as you like; there is no right or wrong way to begin your design.
Let’s get crafty
What you’ll need
Glitter
Scissors
PVA glue
Black card
Coloured chalks
Coloured pastels
On your black card, use white to dot around and draw the outline of a planet. You can use your finger to smudge the colours and blend them into each other; this creates a more fluid effect that will enhance the design. Don’t be afraid to layer the pastels and work with lots of different colours, this will create depth and make your pieces feel more real.
If you’d like to know more about Pilgrims Hospices’ Wellbeing services, email our team with any questions at [email protected] or call the Pilgrims Hospices Advice Line on 01233 504 133.
23rd June 2022
What is Wellbeing at Pilgrims Hospices?
Pilgrims Hospices’ Wellbeing service is an integral part of hospice life; it is the foundation upon which a sense of trust can be established.
Billy Williams, Wellbeing Practitioner, and Justine Robinson, Therapies and Wellbeing Manager, explain how their team support patients who have been referred to hospice care, as well as their carers and families.
The term ‘wellbeing’ feels like it’s everywhere at the moment, but you might be surprised to see it’s an important part of Pilgrims’ services. Wellbeing, put very simply, can be seen as ‘how you are doing’, either as an individual patient or carer, or as part of your family and community.
Often the first port of call for many who have been referred to hospice care, the Wellbeing team provide the building blocks that can help people not only come to terms with their diagnosis, but also enable them to live to their fullest every day.
Wellbeing Practitioners at Pilgrims Hospices provide both patients and carers with holistic, bespoke and tailored therapeutic tools to help them in managing a life-limiting illness. They offer a safe space for people to share their thoughts, open up about their conditions and connect with others going through similar experiences. They give people time to process, understand and come to terms with their diagnosis, whilst providing them with creative outlets and meaningful interactions. The team help people to realise that a life-limiting diagnosis does not mean life stops; in fact, life after diagnosis can flourish and provide a great deal of fulfilment, opportunity and fun.
Our Therapy Centres
At Pilgrims, we believe a sense of wellbeing is important regardless of diagnosis. Our Therapy Centres offer a chance for connection, comfort, meaning, and joy by supporting patients, carers, families and loved ones in what matters to them.
In our Therapy Centres, we hope to help enhance patients’ and carers’ wellbeing by supporting them in a variety of ways. This could be by helping them feel more in control of what is happening to them, or understanding their symptoms better. It might be by giving them time to talk to people who are going through a similar situation, or by engaging in an activity that helps them feel better or more relaxed. We also offer the opportunity to plan for the future and consider what patients might want to create or leave their loved ones as a legacy.
Wellbeing Menu at Pilgrims
Time to Create
In these popular group sessions, patients create artwork based around seasonal themes or events. It is a chance for patients to get together, have fun and try something new.
Patient Virtual Café
Extending its Wellbeing service digitally has meant that Pilgrims is able to include people who are more cautious about leaving home. The Pilgrims Virtual Café is a fantastic opportunity for people to get together virtually, have a chat, make new friends and feel socially connected to the wider world.
Carer Café and Carer Walking Group
Pilgrims’ carer services are hugely valuable to families who are caring for loved ones. The Wellbeing team offer support within the Therapy Centres with tea, coffee and a friendly chat, as well as the opportunity to get outdoors, take in some fresh air and meet people going through similar situations in a peaceful and mindful natural environment.
Pilgrims Hospices cares for thousands of local people each year, free of charge, during the most challenging time in their lives. They offer care and support in people’s own homes, in the community and in their inpatient units as well as running a 24-hour advice line.
30th May 2022
Pilgrims Hospices’ Wellbeing team help patients celebrate Queen’s Platinum Jubilee
Time to Create sessions at Pilgrims Hospices, run by the Wellbeing team, offer patients an opportunity to express themselves through arts and crafts activities in a group setting. This can help with the physical, emotional and spiritual challenges they may face after a diagnosis and referral to hospice care.
The team at Pilgrims Hospice Thanet has been busy getting ready to celebrate the Queen’s Platinum Jubilee. Patients have designed custom pieces of art using the Queen’s famous silhouette as inspiration; drawing on different artistic techniques and styles, the team curated a unique collection to display in the Therapy Centre at the Thanet hospice.
Janis, a patient, shared what she has enjoyed about the project:
“The Queen has been a constant and stabilising presence for the country through so much adversity. It has been fun painting her.”
Billy Williams, Wellbeing Practitioner, said:
“Working on such an iconic and world-famous image has been so much fun. Celebrating the Queen’s Jubilee is something that brings the whole country together; everyone at the hospice has been admiring the finished pieces, which we’ve displayed throughout the Therapy Centre.
“Time to Create sessions are a great way for patients to improve their overall wellbeing, meet people going through similar experiences and unwind in a calm and friendly environment. The group has really enjoyed working on these pieces; patients have experienced reduced anxiety and stress, and been able to focus on something positive.”
The feedback from patients is overwhelmingly positive, too:
“I was introduced to Billy and Time to Create after attending a breathlessness management group. I had no idea the hospice offered a wide range of Wellbeing activities. Time to Create is a wonderful way to spend a few hours every Thursday afternoon. I can completely switch off and enjoy the company of the group. It’s been fabulous.”
– Angela
“This is my first time at Time to Create and I have found it friendly and relaxing. I have really enjoyed it.”
– Donna
“Great company and great fun! I come to Time to Create to do many different arts and crafts, completely out of my comfort zone but so enjoyable.”
– Janis
“We all enjoy Time to Create, such fun and super company.”
– Henry
Wellbeing at Pilgrims is an essential part of the holistic care provided by the charity; mental health and wellbeing are vital in helping patients to live well, cultivate a positive mental attitude and develop a sense of purpose.
Pilgrims’ Wellbeing team offer a variety of both patient and carer-focused support, including art-based therapeutic activities like Time to Create and walking groups for carers. They work alongside the wider therapies team to ensure a holistic and person-centred approach is taken when supporting patients, carers and families.
Pilgrims Hospices cares for thousands of local people each year, free of charge, during the most challenging time in their lives. They offer care and support in people’s own homes, in the community and in their inpatient units as well as running a 24-hour advice line.