“Dying isn’t just a physical process” – Spiritual Care Awareness Month 2022
Sophie Van Walwyk is Head of Psychosocial, Wellbeing and Bereavement Services at Pilgrims Hospices.
She introduces Pilgrims’ Spiritual Care Awareness Month, explains how and where spiritual care fits within hospice care, and shares what spirituality means to her personally.
What does your role involve and how did you come to it?
In my role at Pilgrims, I’m responsible for our social workers, counsellors and spiritual care leads across our three hospice sites. I also oversee Pilgrims Therapy Centres, wellbeing services and bereavement care.
I joined Pilgrims in 2015, originally as a palliative social worker at our Thanet hospice. I’d worked closely with the hospice in my previous role with the local authority; learning more about the care and support offered at Pilgrims, I recognised I wanted to also support individuals who were facing the end of their life.
When someone receives a palliative diagnosis, it can be a frightening and sad time for them and their loved ones. Helping people adjust to and cope with the challenges they are facing is fundamental to hospice care – dying isn’t just a physical process, it is also a psychological, social and spiritual experience. It’s important to recognise a person’s individual needs and care for all of these in the same way we would treat their physical symptoms.
Treating the whole person is the best part of hospice care. Helping people understand what is important to them at the end of their life, and enabling and empowering them to live as well as possible for as long as possible, is such a rewarding part of my role.
What does spirituality mean to you?
Spirituality means different things to different people and it can change over time and in different situations. Traditionally, spirituality was based very much around religious beliefs and rituals, but modern spirituality has become a blend of religious beliefs, humanistic psychology and mystical or obscure traditions.
Spiritual needs can include:
The need to feel hope, peace and gratitude
The need for meaning and purpose in our lives
The need to feel a sense of belonging
The need to love and feel loved
People do different things to meet their spiritual needs, depending on what is important to them. For some this may be through prayer and worship, but it’s important to understand that our spiritual needs can also be met in other ways. These may include being with family and friends, spending time in nature, or through interests and hobbies.
For me, spirituality is how I make sense of myself, the world around me and my place and purpose in it. When I first started to explore my own spirituality, I had more questions than answers, and as I continue on my spiritual journey I often still do! But that’s how spiritual growth works; it helps you to question things about yourself and the world, and to accept things about them. It’s sometimes hard to describe what spirituality feels like, because that’s what it is – a feeling deep within you, a sense of inner calm and peace that only you can feel and understand.
We do have to give time and attention to our own spiritual growth though, it’s not something we can sit back and expect to happen. We have to work at it, by opening our minds and hearts and exploring different ways that may help us to care for ourselves spiritually.
I find being close to nature helps me to tune into my own spirituality, as it brings a sense of stillness and calm. It encourages me to slow both my body and mind, to simply be in the moment, and appreciate the beauty all around me.
What role does spiritual care play in hospice care and why is it important?
Spiritual distress or pain can happen when people are unable to find meaning, hope, love, peace, comfort, strength or connection in their life.
Dame Cicely Saunders, the founder of the modern hospice movement, taught us about total pain at the end of life – meaning that a person can feel not only physical pain, but also psychological, social and spiritual pain. We must recognise each of these elements that an individual may be experiencing, and support these needs with the same level of care we give to managing physical pain and symptoms.
When an individual is facing the end of their life, it’s natural that they may want to reflect on the meaning of their life – perhaps for the first time, or at a deeper level than they have done before. They may also want to think about death, loss and grief in new ways.
Pilgrims Hospices celebrated Spiritual Care Awareness Month throughout January 2022, showcasing the many ways that spiritual care can make a positive difference to patients, their families, carers and loved ones.
There’s much more to death than we think; what if it isn’t just an ending, but an event we can plan for? Thinking beyond the four walls of hospices and hospitals, we have the chance to approach it with confidence and plan a good death. After Wards is a collection of insights and ideas from people who can help us all to re-imagine this essential part of life, and to live well until we die.
Continue the conversation at our Time to Talk events with film screenings, poetry readings, Death Cafes and much more.
15th December 2021
“It’s about being attentive to each person’s needs, religious or not” – Spiritual Care Awareness Month 2022
Petra Kerr has been a Spiritual Care Volunteer at Pilgrims Hospices since 2016.
She shares what inspired her to get involved and why she enjoys her role.
In 2015, I felt I was being called to help people in their time of need, so I enrolled on a course called ‘Pastoral Care’ organised by the Diocese of Canterbury. Once completed, I then attended another course, ‘Funeral and Bereavement’. Contemplating where I could develop my skills, I was instantly drawn to Pilgrims Hospices.
I met with Martyn Yates in 2016 and immediately knew that Pilgrims is where I wanted to be; within a couple of weeks, I had become a Spiritual Care Volunteer.
I always remember Martyn saying to me, ‘never be afraid to laugh in here’. At the time, I thought, ‘how very strange’, but I genuinely have had some really funny moments with staff, patients and families.
I was also blessed in 2017 to be given authorisation from the Bishop of Dover to administer the sacraments as and when required; this was a great privilege for me.
I’m often asked if you have to be religious to receive pastoral or spiritual care. I believe not. For me, it’s about being attentive to each person’s needs, religious or not. It’s about being compassionate and considerate. It’s not always about speaking, either; a simple holding of hands is sometimes all it takes.I strongly believe that spiritual care plays a crucial part within hospice care, as it’s about helping the patient and their family manage any uncertainties they may have and listening to and responding to their needs.
I feel honoured and humbled to be a part of the amazing work Pilgrims do.
Would you like to become a Spiritual Care Volunteer for Pilgrims and make a positive difference to people living with an incurable illness in east Kent?
Pilgrims Hospices celebrated Spiritual Care Awareness Month throughout January 2022, showcasing the many ways that spiritual care can make a positive difference to patients, their families, carers and loved ones.
There’s much more to death than we think; what if it isn’t just an ending, but an event we can plan for? Thinking beyond the four walls of hospices and hospitals, we have the chance to approach it with confidence and plan a good death. After Wards is a collection of insights and ideas from people who can help us all to re-imagine this essential part of life, and to live well until we die.
Continue the conversation at our Time to Talk events with film screenings, poetry readings, Death Cafes and much more.
“Human spirituality is complex” – Spiritual Care Awareness Month 2022
Ken Cox is a Spiritual Care Lead at Pilgrims Hospices, based at the Thanet hospice.
He shares what he enjoys about his role, what spirituality means to him and how spiritual care makes an integral contribution to the holistic nature of hospice care.
What does your role involve and how did you come to it?
In my role at Pilgrims, I am called upon to give spiritual care and advice to anyone who needs it; patients, carers and staff are all included within my remit.
During training to become an ordained Church of England priest, we are required to undertake a pastoral placement. As I had no experience of hospice work, I thought it might be good to expand my knowledge and I managed to get a placement at the Canterbury hospice.
From then on, I felt a call that working in a hospice environment would be the area for me to continue in after my curacy was completed. I initially came to the hospice as a volunteer and was appointed to my current role as Spiritual Care Lead at our Thanet hospice in 2016.
I get a high level of satisfaction in helping people through emotionally hard times. I enjoy the interaction between myself and those I meet. Most of my working career has involved working as a team, so I am comfortable with and enjoy working with the other disciplines on the hospice multi-disciplinary team.
What does spirituality mean to you?
Human spirituality is a complex and difficult thing to nail down. The textbooks define it as relationships, values and life purpose. The main thing I concentrate on is relationships between myself and the people I come into contact with; the rest follows on. A basic relationship can grow into one where I can help the person come to terms with what is happening.
My views on spirituality have been informed by study and reading of various books during ordination training. The academic reading is backed up by experience of being at the frontline of peoples’ emotions and raw feelings at a difficult time in their lives. It was a distinct advantage to have been a volunteer for a few months before taking up the role as a paid job.
What role does spiritual care play in hospice care and why is it important?
From my point of view, spiritual care can play a vital part in a patient’s or carer’s pathway whilst being cared for by Pilgrims. It involves being alongside people, lending a listening ear at their darkest time and being a shoulder to lean on, to help smooth things that are getting a bit bumpy.
An integral part of working at Pilgrims is not to be judgemental. Some people suffer from guilt due to past actions as they come to the end of their life, and wish to atone or at least talk about this, which enables them to move forward.
Spiritual distress can happen at any time during a person’s association with the hospice. This is an area where the Spiritual Care Lead can help immensely, talking through what is causing the distress, not offering any solutions but allowing the person to work through things and clear their minds. Often, it is physical and sometimes emotional pain that can be sorted out. We also work with people who have changed their belief system, either losing faith or discovering a dormant belief that comes to the fore. Quite often, people find it difficult to adjust to their new way of thinking, but spiritual care can help with this.
A spiritual care lead is an integral part of Pilgrims’ multi-disciplinary team, which meets daily to discuss patients. At times, the spiritual care lead can have information that helps clinical staff gain an alternative insight into what a patient is feeling. As part of the team, we can be asked to follow up and provide another eye on the subject from a different perspective, which can be of great help.
Pilgrims Hospices celebrated Spiritual Care Awareness Month throughout January 2022, showcasing the many ways that spiritual care can make a positive difference to patients, their families, carers and loved ones.
There’s much more to death than we think; what if it isn’t just an ending, but an event we can plan for? Thinking beyond the four walls of hospices and hospitals, we have the chance to approach it with confidence and plan a good death. After Wards is a collection of insights and ideas from people who can help us all to re-imagine this essential part of life, and to live well until we die.
Continue the conversation at our Time to Talk events with film screenings, poetry readings, Death Cafes and much more.
8th October 2021
Leave no one behind: Equity in access to palliative care on World Hospice and Palliative Care Day
On Saturday 9 October, Pilgrims Hospices will celebrate palliative care, showing how vital it is, and why we must make sure everyone has access, no matter where they live, who they love, what their age or their background.
Pilgrims Hospices is taking the opportunity to recognise and celebrate the care we provide to the people of east Kent. It’s a chance to demonstrate the value of support, care and share what matters to us as individuals at the end of our lives.
The pandemic has had a huge impact on the hospice and end of life sector. We’ve had to adapt, and have been working continuously to create new, innovative services to keep patients safe and connected, both at home and in our inpatient units. From setting up virtual exercise classes to bereavement counselling and therapy sessions online, we have gone above and beyond to reach out to patients and families with care they so desperately need.
Sophie Van Walwyk, Pilgrims Head of Psychosocial and Wellbeing Services said:
“Hospice care isn’t just about caring for people in the last few days of their life.
“Adjusting to and living with a life limiting condition, or caring for someone who is, can have a huge impact, and it is so important to recognise and support an individual’s whole wellbeing and not just their physical health.”
Pilgrims Therapy Centre Wellbeing services are an integral part of the specialist care and support provided to patients and families.
Pilgrims Wellbeing groups and programmes are all designed to enable patients and carers to live well in both mind and body for as long as possible.
A dedicated team of nurses and carers, along with a broad range of therapists and support staff, provide the very best way to:
Support people to cope with the practical and emotional challenges they are facing when living with a life limiting condition, or caring for someone who is
Help people to understand their condition, to prepare and plan for their future
Inform people of the help and support that is available to them and ensure they are receiving all their entitlements
Give people opportunities to learn from each other through shared experiences and gain peer support from others in similar situations
Teach people strategies to manage and cope with common symptoms and to improve their wellbeing through physical activities and relaxation methods
Encourage people to engage in new activities and learn new skills to promote a greater sense of wellbeing
Link people with other groups and services in their local community that can also support their wellbeing
Do you want to learn more about Pilgrims Hospices care?
Are you someone who needs our support, do you need to speak to a member of our team for advice?
Would you like to learn more about working or volunteering for Pilgrims Hospices? There are many rewarding opportunities to consider, it will surprise you.
Visit pilgrimshospices.org or call our helpline on 01233 504 133, and the team will signpost you to the correct departments for more information.
Each year Pilgrims Hospices give care and comfort to over 2,500 people in east Kent who are coming to terms with an illness that sadly cannot be cured. The charity support patients to live life as well as possible until the very end, free from pain and distress.
1st October 2021
Pilgrims Hospices celebrate Hospice Care Week 2021
Hospice Care Week (4 – 8 October 2021), is all about raising our voices to show how important hospice and end of life care is for people; it’s an opportunity to recognise and celebrate hospices and the care they provide.
It’s a chance to demonstrate the value of support, care and what matters to us as individuals at the end of our lives. After an incredibly difficult 18 months, Pilgrims would like to take Hospice Care Week as an opportunity to celebrate and thank everyone for working so hard to ensure vital services can continue, no matter who you are.
Therapy Centres re-open and new Walk and Talk group for carers launches
After the long period of delivering services virtually, Pilgrims Hospices therapy team welcome patients and carers back to the Therapy Centres as services re-open.
Chris Jones, Pilgrims Wellbeing Practitioner Team Leader said: “It will take some time to re-engage with our service users face to face, and make the necessary arrangements to get groups together and safely back to the hospice Therapy Centres, where we can once again provide the wellbeing sessions that we’ve missed during the COVID-19 lockdown.
“We are delighted to say we are already running a new Walk and Talk group for carers.”
The carers walking group is an informal, easy paced walking group, taking place in the relaxed and beautiful environment of Pegwell Country Park Nature Reserve, offering an opportunity for people to connect, share, re-energise and learn from others who have similar experiences to their own. The walks are supported by Wellbeing Practitioners and trained volunteers.
Chris added: “We welcome Pilgrims carers from across east Kent to join us at the Pegwell Country Park walks.”
The Therapy team have identified two additional walking routes – Canterbury, Toddlers Cove and along the Stour and Ashford, Conningbrook Lakes Country Park.
These new Walk and Talk groups will start in October 2021.
“We share stories and talk about what we’re going through”
Freda Thomas from Minster told us: “The Walk and Talk group is fabulous, I look forward to Wednesdays when I can join with like-minded people; we share stories and talk about what we’re going through, it feels so good to talk about it. Being out in the fresh air is so uplifting, Chris and Kath from the hospice Wellbeing team are lovely and have lots of useful advice.
“Our group finish the walk with a coffee stop and always feel refreshed, and ready to take on the rest of the week.
“I’ve made new friends, and Judy and myself have become particularly good friends and now go swimming together on Tuesdays which also helps with my wellbeing.
“My husband had used Pilgrims services for exercise and breathing classes and more recently the Hospice at Home nurse comes to support him. On one of her visits she explained the benefits of the Walk and Talk group, and put my details forward to the Wellbeing team. It’s definitely helping to make a difference.”
I look forward to Wednesdays when I can join with like-minded people; we share stories and talk about what we’re going through, it feels so good to talk about it.
Freda
Walking with others builds connections, helps ease feelings of loneliness and isolation and research has shown that walking with others reduces anxiety and helps build resilience. Walking in nature can improve wellbeing, mood and self-esteem whilst reducing depression and stress.
Benefits of walking and talking
“Therefore, the aim of the carers’ walking group is primarily to improve health and wellbeing and give them some time out of their caring role. It provides an opportunity for carers to meet, keep fit and make new friends and also enables us to listen to their experiences and offer support in a relaxed and informal setting.” Chris explained.
The group is proving extremely popular and Pilgrims hope to extend the programme to those using their Stepping Stones bereavement services, who may find some additional therapy benefits.
Find out more about Pilgrims wellbeing programmes
Pilgrims wellbeing groups and programmes are all designed to enable patients and carers to live well in both mind and body for as long as possible.
We support people to cope with the practical and emotional challenges they are facing when living with a life limiting condition, along with those who are caring for them.
Get in touch to find out more about Pilgrims Hospices wellbeing services and how to access our therapy sessions:
As we re-introduce our Wellbeing sessions for patients and carers, we welcome back the amazing support of our volunteer workforce in order to make this happen in a seamless fashion.
We’re always interested to hear from people who would like to offer their skills as a volunteer.
There are many interesting and rewarding opportunities to volunteer within Pilgrims Therapy Centres and we welcome volunteers who have a range of skills and experience to support the Wellbeing team.
Some ways that you can volunteer are:
Meet, greet and befriend patients and carers attending Therapy Centres
Support Wellbeing Practitioners to facilitate wellbeing groups and programmes
Help design and deliver creative, relaxing, social and fun activities for patients and carers
Provide wellbeing support calls to patients and carers who are isolated and unable to come to the hospice
Become a Walk and Talk group leader
Provide admin support to the Wellbeing team
If you’d like to find out more or to express an interest in volunteering, please contact Pilgrims’ HR team on01227 812 612.
Each year Pilgrims Hospices give care and comfort to over 2,500 people in east Kent who are coming to terms with an illness that sadly cannot be cured. The charity support patients to live life as well as possible until the very end, free from pain and distress.
15th December 2020
Virtual reality appeal raises thousands for Pilgrims Hospices
Thanks to the efforts of our community of supporters, Pilgrims Hospices raised £14,874.72 for our Virtual Reality appeal.
Virtual reality (VR) is a technology accessed through a headset and headphones, which immerses someone within a 3D and 360-degree video to give them a sense of being physically present in that environment.
For example, through VR, someone could experience diving in the Great Barrier Reef or relaxing on a tropical beach.
Improving quality of life
The latest trials of virtual reality within a healthcare setting have shown an improvement in the quality of life for terminally ill patients by helping ease their anxiety, breathlessness, fatigue, and even reducing pain.
Through our Immerse Your Senses Appeal, we raised enough money to introduce a VR system at each of our hospices in Canterbury, Thanet and Ashford.
The system was used across all of our healthcare and wellbeing settings, including our Therapy Centres, in-patient units, and even in people’s homes, which benefitted a wide range of our patients.
Ann’s story
Ann Morris attended our Therapy Centre at Pilgrims Hospice Thanet, where she benefitted from the VR technology we offered for hospice patients.
What made this VR system particularly special is that it included its own camera so we could record and personalise the experiences we offered to our patients, whether that was a local place they were particularly fond of, or a special occasion they were unable to attend.
In this way, someone who was used to walking their dog along a beach but hadn’t been able to more recently, could once again experience this through virtual reality at Pilgrims.
Due to the simplicity of the system, we were even able to train our patients’ families to record and deliver these magical moments for their loved ones.
This sort of bespoke experience enabled our patients to escape the boundaries of their illness and enjoy treasured moments once again.
Thanks to the generous support of our local community, we were able to provide this incredible technology on each of our sites for two years.
Thank you!
Each year, Pilgrims Hospices give care and comfort to thousands of people in east Kent who are coming to terms with an illness that sadly cannot be cured. The charity support patients to live life as well as possible until the very end, free from pain and distress.